{"id":29482,"date":"2023-05-23T15:13:21","date_gmt":"2023-05-23T15:13:21","guid":{"rendered":"https:\/\/d36deud6t4mnhi.cloudfront.net\/?p=29482"},"modified":"2023-11-30T07:59:28","modified_gmt":"2023-11-30T05:59:28","slug":"fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe","status":"publish","type":"post","link":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/","title":{"rendered":"Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe\u00a0"},"content":{"rendered":"\n<p>The rare disease community continues to strive for innovative solutions to meet patient needs and ensure no person living with a rare disease is left behind.&nbsp;&nbsp;<\/p>\n\n\n\n<p>To mark Rare Disease Day 2023, Yann Le Cam, Chief Executive Officer of EURORDIS and Ipsen\u2019s Jennifer Schranz, Global Head of Rare Disease, Research and Development, connected to discuss EURORDIS\u2019 key focus areas including, shaping rare disease policy in Europe to put patients at the center and prioritizing a holistic patient-centered approach.&nbsp;&nbsp;<\/p>\n\n\n\n<p>Watch the video below containing an excerpt from this discussion, focusing on driving innovation, the power of early diagnosis, and the importance of ensuring the patient voice is heard to ensure adequate medical and social care is provided.&nbsp;&nbsp;&nbsp;<\/p>\n\n\n    <section class=\"video-card \">\n        <div class=\"container\">\n            <!-- Block Details -->\n            <div class=\"video-card-header\">\n                <h2 class=\"video-card-block-title hidden\"><\/h2>\n                <p class=\"charcoal-grey video-card-block-summary hidden\"> <\/p>\n            <\/div>\n\n            <!-- Video Iframe embed -->\n                            <div class=\"video-embed\"> \n                <iframe loading=\"lazy\" title=\"GCI_IP_Fireside_Short FINAL\" src=\"https:\/\/player.vimeo.com\/video\/829469507?app_id=122963&#038;autoplay=1&#038;muted=1&#038;controls=1&#038;loop=1&#038;autopause=1&#038;background=0\" width=\"640\" height=\"360\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture; clipboard-write\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture\" data-ot-ignore><\/iframe>                <\/div>\n            \n            <!-- Block CTA -->\n            <div class=\"cta-block hidden\">\n                            <\/div>\n\n        <\/div>\n    <\/section>\n","protected":false},"excerpt":{"rendered":"<p>The rare disease community continues to strive for innovative solutions to meet patient needs and ensure no person living with<\/p>\n","protected":false},"author":11,"featured_media":29820,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[138],"tags":[],"class_list":["post-29482","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-rare-diseases","entry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe\u00a0 - Global<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe\u00a0 - Global\" \/>\n<meta property=\"og:description\" content=\"The rare disease community continues to strive for innovative solutions to meet patient needs and ensure no person living with\" \/>\n<meta property=\"og:url\" content=\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/\" \/>\n<meta property=\"og:site_name\" content=\"Global\" \/>\n<meta property=\"article:published_time\" content=\"2023-05-23T15:13:21+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-11-30T05:59:28+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/05\/23152813\/fireside.png\" \/>\n\t<meta property=\"og:image:width\" content=\"866\" \/>\n\t<meta property=\"og:image:height\" content=\"401\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/png\" \/>\n<meta name=\"author\" content=\"heloisedetouchet\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:creator\" content=\"@ipsengroup\" \/>\n<meta name=\"twitter:site\" content=\"@ipsengroup\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"heloisedetouchet\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"1 minute\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/\"},\"author\":{\"name\":\"heloisedetouchet\",\"@id\":\"https:\/\/www.ipsen.com\/#\/schema\/person\/bc60024b750ef600f500463cf86905c4\"},\"headline\":\"Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe\u00a0\",\"datePublished\":\"2023-05-23T15:13:21+00:00\",\"dateModified\":\"2023-11-30T05:59:28+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/\"},\"wordCount\":134,\"publisher\":{\"@id\":\"https:\/\/www.ipsen.com\/#organization\"},\"image\":{\"@id\":\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/05\/23152813\/fireside.png\",\"articleSection\":[\"Rare Disease\"],\"inLanguage\":\"en-US\"},{\"@type\":\"WebPage\",\"@id\":\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/\",\"url\":\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/\",\"name\":\"Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe\u00a0 - Global\",\"isPartOf\":{\"@id\":\"https:\/\/www.ipsen.com\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#primaryimage\"},\"image\":{\"@id\":\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/05\/23152813\/fireside.png\",\"datePublished\":\"2023-05-23T15:13:21+00:00\",\"dateModified\":\"2023-11-30T05:59:28+00:00\",\"breadcrumb\":{\"@id\":\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#primaryimage\",\"url\":\"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/05\/23152813\/fireside.png\",\"contentUrl\":\"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/05\/23152813\/fireside.png\",\"width\":866,\"height\":401},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\/\/www.ipsen.com\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe\u00a0\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\/\/www.ipsen.com\/#website\",\"url\":\"https:\/\/www.ipsen.com\/\",\"name\":\"Global\",\"description\":\"\",\"publisher\":{\"@id\":\"https:\/\/www.ipsen.com\/#organization\"},\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\/\/www.ipsen.com\/?s={search_term_string}\"},\"query-input\":\"required name=search_term_string\"}],\"inLanguage\":\"en-US\"},{\"@type\":\"Organization\",\"@id\":\"https:\/\/www.ipsen.com\/#organization\",\"name\":\"IPSEN\",\"url\":\"https:\/\/www.ipsen.com\/\",\"logo\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.ipsen.com\/#\/schema\/logo\/image\/\",\"url\":\"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/12\/07162335\/Latest_Ipsen-logo_168x48.svg\",\"contentUrl\":\"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/12\/07162335\/Latest_Ipsen-logo_168x48.svg\",\"caption\":\"IPSEN\"},\"image\":{\"@id\":\"https:\/\/www.ipsen.com\/#\/schema\/logo\/image\/\"},\"sameAs\":[\"https:\/\/www.facebook.com\/Ipsengroup\",\"https:\/\/x.com\/ipsengroup\"]},{\"@type\":\"Person\",\"@id\":\"https:\/\/www.ipsen.com\/#\/schema\/person\/bc60024b750ef600f500463cf86905c4\",\"name\":\"heloisedetouchet\",\"image\":{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\/\/www.ipsen.com\/#\/schema\/person\/image\/\",\"url\":\"https:\/\/secure.gravatar.com\/avatar\/3953d070f3f9f21285865eb069e19b28?s=96&d=mm&r=g\",\"contentUrl\":\"https:\/\/secure.gravatar.com\/avatar\/3953d070f3f9f21285865eb069e19b28?s=96&d=mm&r=g\",\"caption\":\"heloisedetouchet\"}}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe\u00a0 - Global","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/","og_locale":"en_US","og_type":"article","og_title":"Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe\u00a0 - Global","og_description":"The rare disease community continues to strive for innovative solutions to meet patient needs and ensure no person living with","og_url":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/","og_site_name":"Global","article_published_time":"2023-05-23T15:13:21+00:00","article_modified_time":"2023-11-30T05:59:28+00:00","og_image":[{"width":866,"height":401,"url":"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/05\/23152813\/fireside.png","type":"image\/png"}],"author":"heloisedetouchet","twitter_card":"summary_large_image","twitter_creator":"@ipsengroup","twitter_site":"@ipsengroup","twitter_misc":{"Written by":"heloisedetouchet","Est. reading time":"1 minute"},"schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"Article","@id":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#article","isPartOf":{"@id":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/"},"author":{"name":"heloisedetouchet","@id":"https:\/\/www.ipsen.com\/#\/schema\/person\/bc60024b750ef600f500463cf86905c4"},"headline":"Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe\u00a0","datePublished":"2023-05-23T15:13:21+00:00","dateModified":"2023-11-30T05:59:28+00:00","mainEntityOfPage":{"@id":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/"},"wordCount":134,"publisher":{"@id":"https:\/\/www.ipsen.com\/#organization"},"image":{"@id":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#primaryimage"},"thumbnailUrl":"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/05\/23152813\/fireside.png","articleSection":["Rare Disease"],"inLanguage":"en-US"},{"@type":"WebPage","@id":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/","url":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/","name":"Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe\u00a0 - Global","isPartOf":{"@id":"https:\/\/www.ipsen.com\/#website"},"primaryImageOfPage":{"@id":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#primaryimage"},"image":{"@id":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#primaryimage"},"thumbnailUrl":"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/05\/23152813\/fireside.png","datePublished":"2023-05-23T15:13:21+00:00","dateModified":"2023-11-30T05:59:28+00:00","breadcrumb":{"@id":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#primaryimage","url":"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/05\/23152813\/fireside.png","contentUrl":"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/05\/23152813\/fireside.png","width":866,"height":401},{"@type":"BreadcrumbList","@id":"https:\/\/www.ipsen.com\/rare-diseases\/fireside-chat-innovation-and-policy-change-in-rare-diseases-in-europe\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/www.ipsen.com\/"},{"@type":"ListItem","position":2,"name":"Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe\u00a0"}]},{"@type":"WebSite","@id":"https:\/\/www.ipsen.com\/#website","url":"https:\/\/www.ipsen.com\/","name":"Global","description":"","publisher":{"@id":"https:\/\/www.ipsen.com\/#organization"},"potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/www.ipsen.com\/?s={search_term_string}"},"query-input":"required name=search_term_string"}],"inLanguage":"en-US"},{"@type":"Organization","@id":"https:\/\/www.ipsen.com\/#organization","name":"IPSEN","url":"https:\/\/www.ipsen.com\/","logo":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.ipsen.com\/#\/schema\/logo\/image\/","url":"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/12\/07162335\/Latest_Ipsen-logo_168x48.svg","contentUrl":"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/2023\/12\/07162335\/Latest_Ipsen-logo_168x48.svg","caption":"IPSEN"},"image":{"@id":"https:\/\/www.ipsen.com\/#\/schema\/logo\/image\/"},"sameAs":["https:\/\/www.facebook.com\/Ipsengroup","https:\/\/x.com\/ipsengroup"]},{"@type":"Person","@id":"https:\/\/www.ipsen.com\/#\/schema\/person\/bc60024b750ef600f500463cf86905c4","name":"heloisedetouchet","image":{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/www.ipsen.com\/#\/schema\/person\/image\/","url":"https:\/\/secure.gravatar.com\/avatar\/3953d070f3f9f21285865eb069e19b28?s=96&d=mm&r=g","contentUrl":"https:\/\/secure.gravatar.com\/avatar\/3953d070f3f9f21285865eb069e19b28?s=96&d=mm&r=g","caption":"heloisedetouchet"}}]}},"_links":{"self":[{"href":"https:\/\/www.ipsen.com\/wp-json\/wp\/v2\/posts\/29482","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.ipsen.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.ipsen.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.ipsen.com\/wp-json\/wp\/v2\/users\/11"}],"replies":[{"embeddable":true,"href":"https:\/\/www.ipsen.com\/wp-json\/wp\/v2\/comments?post=29482"}],"version-history":[{"count":8,"href":"https:\/\/www.ipsen.com\/wp-json\/wp\/v2\/posts\/29482\/revisions"}],"predecessor-version":[{"id":30151,"href":"https:\/\/www.ipsen.com\/wp-json\/wp\/v2\/posts\/29482\/revisions\/30151"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.ipsen.com\/wp-json\/wp\/v2\/media\/29820"}],"wp:attachment":[{"href":"https:\/\/www.ipsen.com\/wp-json\/wp\/v2\/media?parent=29482"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.ipsen.com\/wp-json\/wp\/v2\/categories?post=29482"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.ipsen.com\/wp-json\/wp\/v2\/tags?post=29482"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}