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05 September 2022 - 5 mins read
‘A Life in a Day’: the realities of living with FOP
I was honored to be invited to take on the challenge to live ‘A Life in a Day of a patient with FOP’ – but also apprehensive. The challenge simulated a day spent living as someone who has fibrodysplasia ossificans progressiva (FOP). FOP is a debilita...
12 February 2024 - 4 mins read
Advocating for Yourself: L. Marie’s Experience with PBC
L. Marie started her career more than 20 years ago helping others access community health programs and healthcare—a skillset she never imagined would eventually be put to use advocating for her own health after being dismissed by her doctors. ...
03 June 2024 - 3 mins read
Better, Bolder Science: Across the bench collaboration in epigenetics
The past 30 years have brought significant innovations to the way cancer is diagnosed and treated, including for people with some of the most difficult-to-treat cancers. As scientific understanding has expanded, we now know what drives certain cancers thro...
31 August 2023 - 2 mins read
Caring for a Loved One with Metastatic Pancreatic Cancer: Nora’s Story
Nora and her husband, Hector, met 39 years ago, got married shortly after, and have been inseparable ever since. In 2021, Hector was diagnosed with metastatic pancreatic cancer, which threw their entire family into navigating a very difficult diagnosis. No...
31 January 2024 - 4 mins read
Closing Gaps in Cancer Care – Together
Dr. Mónica de Abadal, Head of Medical Affairs, North America at Ipsen shares why she believes it takes everyone in the healthcare ecosystem coming together to close existing gaps and address health inequities in cancer care. ...
06 September 2024 - 3 mins read
Going for Gold: Sport Psychology Supports Learning & Development
What does it take to win a gold medal? It takes a lot more than healthy eating and long training sessions, according to Dr. Greta Dzieciaszek, Senior Director, People, Organization and Capabilities for Ipsen North America and a trained sport psychologist. ...
31 August 2023 - 2 mins read
Life with FOP: Savannah’s Story
Savannah – or Sassy Savvy as she’s known by her family – is a caring sister, a strong-willed daughter and above all else, overfilling with creativity, happiness and laughter. Savannah is also living with a rare disease, fibrodysplasia ossificans prog...
31 August 2023 - 2 mins read
Life with Primary Biliary Cholangitis: Sabrina’s Story
Sabrina is a lover of nature, mother and grandmother, whose outlook on life is to make every moment count. Sabrina lives with primary biliary cholangitis (PBC), which means every day is different depending on the severity of her symptoms, but this doesn’...
07 December 2023 - 2 mins read
Living Every Moment: Debbie’s Experience with Follicular Lymphoma
Debbie has been living with a blood cancer, follicular lymphoma (FL), since 2011 when she was initially diagnosed during her studies in England. While living with an indolent cancer has had its challenges and can be filled with uncertainty, Debbie seeks to...
31 August 2023 - 2 mins read
Managing Post-Stroke Spasticity: Hub’s Story
Hub experienced a hemorrhagic stroke in 2021 as a result of bleeding in the brain. Like many stroke survivors, Hub experiences spasticity, a condition in which muscles contract uncontrollably leading to pain, stiffness and limited movement. As a father of ...