{"id":29988,"date":"2023-04-13T11:48:08","date_gmt":"2023-04-13T11:48:08","guid":{"rendered":"https:\/\/d36deud6t4mnhi.cloudfront.net\/?page_id=85"},"modified":"2023-06-26T09:26:55","modified_gmt":"2023-06-26T07:26:55","slug":"foundation-ipsen","status":"publish","type":"page","link":"https:\/\/www.ipsen.com\/us\/company\/foundation-ipsen\/","title":{"rendered":"Fondation Ipsen"},"content":{"rendered":"    <section class=\"sub-page-banner bg-img\" style=\"background-image:url(https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/sites\/2\/2023\/05\/02112644\/01_Module-1-E28093-banner_Ipsen-fondation_HeaderBanner.jpg)\">\n        <div class=\"container content-sec\">\n            <nav aria-label=\"breadcrumb\">\n            <ol class=\"breadcrumb\">\n                <li class=\"breadcrumb-item\"><a href=\"https:\/\/www.ipsen.com\/us\">Home<\/a><\/li><li class=\"breadcrumb-item visible\"><a href=\"https:\/\/www.ipsen.com\/us\/company\/\">Who We Are<\/a><\/li><li class=\"breadcrumb-item active\" aria-current=\"page\">Fondation Ipsen<\/li><\/ol>\n            <\/nav>            <h1 class=\"visible\">Fondation Ipsen<\/h1>\n            <p class=\"visible\">Rare But Not Alone.<\/p>\n        <\/div>\n    <\/section>\n\n\n\t<!-- Ipsen Quotes Start -->\n\t<section class=\"quotes-section \">\n\t\t<div class=\"container\">\n\t\t\t\t\t\t<div class=\"quote-sec-inner\" style=\"background-image: url(https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/sites\/2\/2023\/04\/02110014\/Group-252.png);background-color: #DBEAF5;\">\n\t\t\t\t\t<div class=\"row\">\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"column-1 col-xl-4 col-md-6 col-xs-12 \">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"quote-img\">\n\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" src=\"https:\/\/www.ipsen.com\/websites\/ipsen_com_v2\/wp-content\/uploads\/sites\/2\/2023\/04\/02110014\/03_Module-7-E28093-CEO-message-leadership_Dr-Levine-Photograph-3croped.png\" alt=\"Author Image\" title=\"Author Image\" >\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"column-2 col-xl-8 col-md-6 col-xs-12 \">\n\t\t\t\t\t\t\t\t<div class=\"quote-content\">\n\t\t\t\t\t\t\t\t\t<div class=\"quote-para \">\n\t\t\t\t\t\t\t\t\t\t<p class=\"para charcoal-grey \">\n\t\t\t\t\t\t\t\t\t\t\t<p>While rare diseases impact millions of patients, the journey that each person undertakes for diagnosis and treatment is unique.  Fondation Ipsen is privileged to support the plight of patients with rare disease.<\/p>\n\t\t\t\t\t\t\t\t\t\t<\/p>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<div class=\"quote-sign-div\">\n\t\t\t\t\t\t\t\t\t\t<div class=\"quote-author-div\">\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"quote-dash-div\">\n\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"quote-dash\">\n\n\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p class=\"quote-author primary-blue\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\tDr. James A Levine\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p class=\"quote-author-role charcoal-grey \">\n\t\t\t\t\t\t\t\t\t\t\t\t\tPresident, Fondation Ipsen\t\t\t\t\t\t\t\t\t\t\t\t<\/p> \n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t\t<\/div>\n<\/section>\n<!-- Ipsen Quotes End -->\n\n\n\n<div class=\"wp-block-group\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<div class=\"wp-block-columns is-layout-flex wp-container-core-columns-is-layout-1 wp-block-columns-is-layout-flex\">\n<div class=\"wp-block-column is-layout-flow wp-block-column-is-layout-flow\">\n<h2 class=\"wp-block-heading\">Raising rare disease awareness for future generations<\/h2>\n\n\n\n<figure class=\"wp-block-image size-large is-style-default\"><img decoding=\"async\" src=\"https:\/\/www.ipsen.com\/wp-content\/uploads\/2023\/05\/02-2_Company-Fondation_Module-6-\u2013-Strategy_Raising-rare-disease-awareness-for-future-generations-2-1024x149.jpg\" alt=\"\" class=\"wp-image-18686\" \/><\/figure>\n\n\n\n<div style=\"height:47px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n\n\n\n<p>Building on Fondation Ipsen\u2019s legacy of engaging the public and the scientific community, our Rare But Not Alone strategy focuses on rare disease awareness and early detection. Our goal is ambitious but must be achieved to end the unnecessary suffering caused by delayed diagnosis for patients around the world. To deliver on our strategy, Fondation Ipsen delivers dozens of programs in more than 100 countries. These include:<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Partnering with the journal Science and delivering bimonthly podcasts to the rare disease community impacting 800,000 people per episode<\/li>\n\n\n\n<li>Publishing \u201cLittle Issue\u201d, a quarterly science and educative magazine for 6\u20139-year-old children. The magazine is distributed for free in underserved communities and schools, in South Africa, Togo, Ivory Coast, Niger, Gambia, Madagascar as well as in Nepal, in bilingual versions (English &amp; Afrikaans and French &amp; English). In 2022, 167,380 copies of Little Issue were distributed, and more than 500,000 children accessed the publication<\/li>\n\n\n\n<li>Developing classroom curricula with Eurordis to educate children and help schools and high schools become more inclusive<\/li>\n\n\n\n<li>Published an illustrated book series for children on rare disease, such as the \u201cMy Life Beyond\u201d series (7-9 years old), in partnership with Mayo Clinic or the \u201cChildren of Genetics\u201d series (3-6 years old), in partnership with CHU de Dijon, France<\/li>\n\n\n\n<li>Organizing book distribution and events in schools, such as the Autism Awareness Day in Clamart, France, or by partnering events such as the Educapcity Citizen Rallye for children<\/li>\n\n\n\n<li>Teaming up with associations promoting inclusivity using innovative techniques such as with Caroline Delage (Productions Au tableau) and Fondation PSG\u2019s program \u201cLes Onze de L\u00e9gendes,\u201d a football training program for children living with and without an autism spectrum disorder<\/li>\n<\/ul>\n\n\n<\/div>\n<\/div>\n<\/div><\/div>\n\n\n\n<!--Alert Card Layout Start Here-->\n<section class=\"alertcard-section\">\n      <div class=\"container\">\n        <!--Alert Box HTML Start Here-->\n        <div class=\"alert-box info-box\">\n                    <div class=\"info-icon\">\n              <span class=\"info-circle\"><img decoding=\"async\" src=\"https:\/\/www.ipsen.com\/us\/wp-content\/themes\/ipsen-main\/dist\/images\/alert-info-icon.png\" alt=\"Alert Icon\" title=\"Alert Icon\" \/><\/i>\n            <\/div>\n                    <div class=\"info-contents\">\n            <p class=\"info-head visible\">Catalyzing collaborations to advance science and support patients<\/p>\n            <p class=\"info-sub-head-para visible\"><\/p>\n            <div class=\"alert-content visible\"><p>Created in 1983, Fondation Ipsen is a non-profit foundation under the aegis of the Fondation de France. Fondation Ipsen is equipped to educate, help share information and improve early detection of rare diseases through collaborations with key leaders in the rare disease community. Fondation Ipsen\u2019s partners include the American Association for the Advancement of Science, Mayo Clinic, UCSF, OECD, the National Press Foundation, Orphanet, Eurordis and multiple patient organizations across Europe, the United States, Africa and South America. Fondation Ipsen catalyzes synergies between its partners, strengthens relationships and reinforces effective communication strategies.<\/p>\n<p>In 2022 Fondation Ipsen engaged more than 250 scientific experts from 220 organizations across 43 countries.<\/p>\n<p>In 2022, Fondation Ipsen reached 43 million people through media outlet, international news organizations and events. Through its BookLab publication program, Fondation Ipsen developed and distributed more than 410,000 books in 106 countries and in 7 languages.<\/p>\n<\/div>\n          <\/div>\n        <\/div>\n        <!--Alert Box HTML Start Here-->\n      <\/div>\n    <\/section>\n<!--Alert Card Layout End Here-->\n\n\n\n<!--Alert Card Layout Start Here-->\n<section class=\"alertcard-section\">\n      <div class=\"container\">\n        <!--Alert Box HTML Start Here-->\n        <div class=\"alert-box info-box\">\n                    <div class=\"info-icon\">\n              <span class=\"info-circle\"><img decoding=\"async\" src=\"https:\/\/www.ipsen.com\/us\/wp-content\/themes\/ipsen-main\/dist\/images\/alert-info-icon.png\" alt=\"Alert Icon\" title=\"Alert Icon\" \/><\/i>\n            <\/div>\n                    <div class=\"info-contents\">\n            <p class=\"info-head visible\">Ensuring access to evidence-based scientific information<\/p>\n            <p class=\"info-sub-head-para visible\"><\/p>\n            <div class=\"alert-content visible\"><p>Fondation Ipsen partners with Eurordis to support the international Rare Disease Day campaign. Through this partnership, the foundation raises knowledge of rare diseases \u2013 especially through school programs &#8211; and improves equity for people living with rare diseases. Fondation Ipsen supports several national alliances to support awareness campaigns, on social and other media, and even facilitated the illumination of iconic buildings in Rare Disease Day colors. Fondation Ipsen has involved more than 200 patient associations and helped change policy at the European Union and in France.<\/p>\n<p>Fondation Ipsen also supports Orphanet to improve health care access, develop electronic medical records and advance knowledge throughout the rare disease community. Orphanet has been able to increase and improve its content and now publishes a bimonthly international newsletter.<\/p>\n<\/div>\n          <\/div>\n        <\/div>\n        <!--Alert Box HTML Start Here-->\n      <\/div>\n    <\/section>\n<!--Alert Card Layout End Here-->\n\n\n\n<!--Alert Card Layout Start Here-->\n<section class=\"alertcard-section\">\n      <div class=\"container\">\n        <!--Alert Box HTML Start Here-->\n        <div class=\"alert-box info-box\">\n                    <div class=\"info-icon\">\n              <span class=\"info-circle\"><img decoding=\"async\" src=\"https:\/\/www.ipsen.com\/us\/wp-content\/themes\/ipsen-main\/dist\/images\/alert-info-icon.png\" alt=\"Alert Icon\" title=\"Alert Icon\" \/><\/i>\n            <\/div>\n                    <div class=\"info-contents\">\n            <p class=\"info-head visible\">Disseminating developments in rare disease diagnosis<\/p>\n            <p class=\"info-sub-head-para hidden\"><\/p>\n            <div class=\"alert-content visible\"><p>Over four decades, Fondation Ipsen has organized meetings with international specialists working in neuroscience, endocrinology, ageing and oncology. The Fondation has awarded prizes for outstanding science and partnered with major scientific journals such as Nature, Cell or Science. This historic commitment continued with the organization of 31 international webinars in collaboration with the world\u2019s preeminent scientific journal, Science. Each event reached about 800,000 people and included world authorities who discussed critical issues in the rare diseases, such as psychological challenges, the patient journey, technological advances to facilitate diagnosis, creation of international patient registries, and new therapeutic modalities such as gene therapy.<\/p>\n<p>Fondation Ipsen also partnered with UCSF to develop an interdisciplinary online symposium on innovation in rare diseases. This program connected patients to Biotech, and support international collaborations. With subsequent broadcasting on YouTube and Facebook, the initiative reached an audience of over 10 million viewers.<\/p>\n<p>Overall, in 2022, Fondation Ipsen reached 34 million people through digital communication, including nearly 33,000 podcast listeners. It distributed over 110,000 printed books and nearly 10,000 eBooks. It financially supported 17 different organizations.<\/p>\n<\/div>\n          <\/div>\n        <\/div>\n        <!--Alert Box HTML Start Here-->\n      <\/div>\n    <\/section>\n<!--Alert Card Layout End Here-->\n\n\n\n    <div class=\"container tab-pane-container\">\n        <section class=\"profile-card\">\n            <div class=\"profile-slim-listing\">\n    <div class=\"container slim-listing-container\">\n        <h2 class=\"profile-head visible\">The Fondation Ipsen leadership team<\/h2>\n        <p class=\"profile-summary hidden\"><\/p>\n        \n        <div class=\"slim-lisitng \">\n                        <div class=\"row \">\n                <!-- slim profile card -->\n                                        <div class=\"col-lg-4 col-md-6 col-sm-12\">\n                            <div class=\"profile-slim-card\">\n                                <div class=\"profile-slim-card-inner\">\n\n                                     \n                                            <p class=\"profile-head-para\">James A. Levine, M.D., Ph.D.<\/p>\n                                     \n\n                                                \n                                    <p class=\"profile-designation \">President <\/p>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"col-lg-4 col-md-6 col-sm-12\">\n                            <div class=\"profile-slim-card\">\n                                <div class=\"profile-slim-card-inner\">\n\n                                     \n                                            <p class=\"profile-head-para\">Celine Colombier-Maffre<\/p>\n                                     \n\n                                                \n                                    <p class=\"profile-designation \">Director of Publications <\/p>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"col-lg-4 col-md-6 col-sm-12\">\n                            <div class=\"profile-slim-card\">\n                                <div class=\"profile-slim-card-inner\">\n\n                                     \n                                            <p class=\"profile-head-para\">Florian Delval<\/p>\n                                     \n\n                                                \n                                    <p class=\"profile-designation \">Head of International Relations <\/p>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                                        <div class=\"col-lg-4 col-md-6 col-sm-12\">\n                            <div class=\"profile-slim-card\">\n                                <div class=\"profile-slim-card-inner\">\n\n                                     \n                                            <p class=\"profile-head-para\">Clea Stemitsiotis<\/p>\n                                     \n\n                                                \n                                    <p class=\"profile-designation \">Program Specialist <\/p>\n                                <\/div>\n                            <\/div>\n                        <\/div>\n                            <\/div>\n        <\/div>\n    <\/div>\n<\/div>        <\/section>\n    <\/div>\n\n\n\n\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":6,"featured_media":0,"parent":29975,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-29988","page","type-page","status-publish","hentry","entry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Fondation Ipsen: A non-profit foundation dedicated to diagnose Rare Diseases<\/title>\n<meta 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