Every day we strive to understand the needs and experiences of the communities we serve
PUTTING PEOPLE BEFORE PATIENTS
We make the biggest impact when we work with people who live with a rare disease, cancer or a neurological condition, their families and caregivers to really understand the realities of their experience. When we talk about patient centricity, we understand being a patient is only one aspect of a person’s identity. Ipsen works with more than 25 patient advocacy organizations in the U.S. to ensure people impacted by the disease or condition are truly given a seat at the table when it comes to their care and the developments that Ipsen is making. We believe this kind of close collaboration and inclusion is essential to ensure we chart the right course.
Ipsen CARES
Helping patients get access to their prescribed medications with the information and support they need
Ipsen CARES (Coverage, Access, Reimbursement & Education Support) serves as a central point of contact between patients/caregivers, healthcare providers, insurance companies, and Specialty Pharmacies.
Making a difference
Ipsen is committed to working closely and inclusively with the patient community to impact medical care and patient outcomes in our focus fields of Oncology, Rare Disease and Neuroscience.
Oncology
With over 35 years of oncology experience, our growing portfolio is focused on difficult-to-treat cancers: pancreatic cancer, follicular lymphoma, epithelioid sarcoma, as well as gastrointestinal and pancreatic neuroendocrine tumors and carcinoid syndrome.
Rare Disease
Our focus is on rare growth disorders and rare liver diseases: Alagille Syndrome, biliary atresia, primary familial intrahepatic cholestasis, primary biliary cholangitis, primary sclerosing cholangitis and fibrodysplasia ossificans progressiva.
Neuroscience
Ipsen brings 30 years of clinical experience to advancing the understanding of neurological conditions such as spasticity and cervical dystonia. We are a global leader in the research, development, manufacturing, and commercialization of neurotoxins.
Working with patient organizations
Acromegaly Community
Alagille Syndrome Alliance
American Liver Foundation
American Stroke Association (ASA)
BA Hero
BARE
Brain Injury Association of America (BIAA)
Carcinoid Cancer Foundation (CCF)
Cerebral Palsy Alliance Research Foundation (CPARF)
Dystonia Medical Research Foundation (DMRF)
EveryLife Foundation for Rare Diseases
Global Genes
Global Liver Institute
The Healing NET Foundation
International FOP Association (IFOPA)
Learn Advocate Connect NETS (LACNETS)
Let’s Win Pancreatic Cancer
Leukemia & Lymphoma Society (LLS)
Lustgarten Foundation
Lymphoma Research Foundation
National Organization for Rare Disorders (NORD)
Neuroendocrine Cancer Awareness Network (NCAN)
Neuroendocrine Tumor Research Foundation (NETRF)
Pancreatic Cancer Action Network (PanCAN)
PBCers
PFIC Network
PSC Partners
Sarcoma Alliance
Sarcoma Foundation of America
World Pancreatic Cancer Coalition (WPCC)
Making clinical trials accessible and understandable
We are committed to ensuring that all our published research is freely available to everyone. To make this happen, we work closely with the patient community to provide summaries of key clinical studies sponsored by Ipsen in easy-to-understand language, so they are not just available, but accessible to all.
Find a clinical trial
Clinical trials can lead to medical outcomes that help improve lives, and we thank all people who make this critical research possible through their participation in trials.
If you would like to learn more about enrolling in a study, visit clinicaltrials.gov, speak to your health care provider or learn more about clinical trials sponsored by Ipsen.
Our four-pillar approach to responsibility
Ipsen unites all our employees behind our global commitment to doing business responsibly through Generation Ipsen – For Positive Change. This fully integrated approach is built on four pillars: Environment, Patients, People and Governance. Generation Ipsen is designed to ensure we meet patients’ needs while working in ways that are ethical, responsible and community-minded.
Better, Bolder Science: Across the bench collaboration in epigenetics
Dr. Lindsey Rodrigues, a biomedical engineer and cancer biologist by training, and Lindsey Eichinger, who has a background in veterinary sciences and cell biology, are two scientists at Ipsen leading the exploration of epigenetics – a new frontier for cancer research and the future of cancer.
Seven Years Out: The road to recovery from a stroke-like episode
Randy loves to read, enjoy the outdoors, and spend time with his family. He enjoys going to the gym and took up aquatic therapy to exercise and make new friends. He’s come a long way since he experienced a car…
Measuring pancreatic cancer care in moments
Nearly 25 years ago, the five-year survival rate for pancreatic cancer was just 5 percent, making it one of the most difficult cancers to treat with the poorest prognosis.
Mighty bonds: Leaning on others living with FOP
Carli and Erin, cross-country best friends, discuss how they’ve realized the importance of a strong support network of immediate family and friends, along with people who have a shared experience of living with FOP. Their connections have been key to…
Advocating for Yourself: L. Marie’s Experience with PBC
L. Marie started her career more than 20 years ago helping others access community health programs and healthcare—a skillset she never imagined would eventually be put to use advocating for her own health after being dismissed by her doctors.
Closing Gaps in Cancer Care – Together
Dr. Mónica de Abadal, Head of Medical Affairs, North America at Ipsen shares why she believes it takes everyone in the healthcare ecosystem coming together to close existing gaps and address health inequities in cancer care.
Music and Medicine: Understanding the role of epigenetics in cancer research
Dr. Amauri Soares, VP Head of Early Development & Innovation Oncology at Ipsen usesmusic to explain the importance of understanding the genetics of cancer and how the emerging field ofepigenetics could unlock a new paradigm for precision medicine.
Living Every Moment: Debbie’s Experience with Follicular Lymphoma
Debbie has been living with a blood cancer, follicular lymphoma (FL), since 2011 when she was initially diagnosed during her studies in England. While living with an indolent cancer has had its challenges and can be filled with uncertainty, Debbie…
Managing Post-Stroke Spasticity: Hub’s Story
Hub experienced a hemorrhagic stroke in 2021 as a result of bleeding in the brain. Like many stroke survivors, Hub experiences spasticity, a condition in which muscles contract uncontrollably leading to pain, stiffness and limited movement. As a father of…
Life with FOP: Savannah’s Story
Savannah – or Sassy Savvy as she’s known by her family – is a caring sister, a strong-willed daughter and above all else, overfilling with creativity, happiness and laughter. Savannah is also living with a rare disease, fibrodysplasia ossificans progressiva…