Biliary Atresia (BA) is a rare liver disease that usually appears in the first month of a baby’s life.1 In
Tag: Rare disease
Understanding the true impact of living with FOP
This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced, a major scientific milestone in fibrodysplasia ossificans progressiva
Living with PBC: The Person Behind the Chart
‘Invisible’ diseases like primary biliary cholangitis (PBC) can be difficult to recognise, diagnose and to manage effectively. Here Prof. Gideon
‘A Life in a Day’: the realities of living with FOP
I was honored to be invited to take on the challenge to live ‘A Life in a Day of a
ILC 2022: Let’s talk PBC
The International Liver Congress (ILC)1 provides a key opportunity for us to meet and discuss the management and research of