Driving everything we do
Patients are driving everything we do at Ipsen. It is their experiences, insights and passion that drives us, and keeps us focused on what matters most: shaping positive change that can help people across the world to live better, longer lives.
Our focus on the fields of oncology, rare disease and neuroscience enables us to develop an ever-greater understanding of patients’ needs. Our patient pillar aims to drive innovation and increase access, affordability, quality and improve patient experiences.
- Delivering a truly patient-driven experience, including optimizing patient organization engagement, systematic inclusion of patient impact measures and product quality.
- Enabling access to good health – with our tiered pricing framework and co-payment programs, increasing education and health-literacy through Fondation Ipsen, continued open access to clinical trial data, and minimizing delays for underserved populations.
- Driving innovation – expanding our pipeline, translating innovation into life-changing medicines and partnerships to pioneer new treatments and support.
How we support the patient community across the world
At Ipsen, we strive to build innovation and drive meaningful change guided by what the patient community values most. Examples of how we live this in practice include:
Fondation Ipsen
Since 1983 under the aegis of the Fondation de France, Fondation Ipsen has been dedicated to increasing scientific knowledge and patient research. In 2021, through its relationships with patient organizations, its publishing enterprise, and international scientific collaborators, the Fondation interacted directly with more than 22 million people in 100 countries. The Fondation’s latest strategic focus, “Rare But Not Alone,” was launched in 2020.
Continuous improvement in patient engagement
We gather continual feedback to ensure we are serving our patient communities to the best of our ability. Ipsen has been running an annual patient organization survey since 2021 to gather feedback on their satisfaction with interactions with Ipsen. With responses from 85 patient organizations, we received an overall satisfaction rating of 8.7/10 in 2023. The results are used to evolve and drive improvements in how Ipsen collaborates with the patient community.
Learn more
Keeping language simple
To help the patient community understand what our clinical studies involve, and the data, we develop lay-friendly language summaries.
Learn more
Bringing science to the people
We are committed to providing free and accessible information and have made 100% of our scientific publications publicly accessible for free.
Focusing on patient experience: it starts with listening
We strive to incorporate patients’ perspectives at every stage of the medicine development process, starting with early discovery research in our laboratories. To do this, we hold advisory sessions and conduct comprehensive patient experience mapping and data generation in partnership with patient communities. For example, to understanding the reality of living with primary biliary cholangitis (PBC), Ipsen collaborated with PBC patient organizations in the UK, US, Germany, Canada, and Israel, to co-create, validate, and publish the first patient experience map in PBC.
COLLABORATING WITH PATIENT ORGANIZATIONS
We focus on building long-term relationships with patient organizations so that working together we can drive lasting change for people living with cancer, rare diseases, and neurological conditions. Through our collaborations with more than 270 patient organizations globally on projects as well as sponsorship and donations, we can best provide support to the patient community every step of the way.
Using real-world data for better solutions for patients
Innovation to improve patient outcomes doesn’t always resemble the scenes in the movies where the brilliant scientist makes a breakthrough alone in the lab. Sometimes…