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Living with Rare Liver Diseases: Unique challenges, Shared Experiences 
 • 2 mins read

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Living with Rare Liver Diseases: Unique challenges, Shared Experiences 

Cholestatic liver diseases are a rare but significant group of conditions that impact both children and adults. Three such conditions—Primary Biliary Cholangitis (PBC), Progressive Familial Intrahepatic Cholestasis (PFIC), and Alagille Syndrome (ALGS)—share commonalities yet are unique in their caus


Scientific Journey from Coal to Diamond: Myths and Misperceptions in Rare Disease Innovation 
 • 3 mins read

 – 3 mins read

Scientific Journey from Coal to Diamond: Myths and Misperceptions in Rare Disease Innovation 

In storytelling, you might hear of a superhero who squeezes coal with immense strength and heat, instantly creating a flawless diamond. While fiction, it’s true that diamonds are rare and formed under precise conditions over millions of years. For me, this analogy resonates deeply with the developme


A Life in Science: Shaping the Future of Precision Medicine 
 • 1 mins read

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A Life in Science: Shaping the Future of Precision Medicine 

In the latest installment of our ‘A Life in Science’ series, we’re excited to introduce Crystel Ogier, our Clinical Biomarker Director, who leads the awareness and implementation of companion diagnostics at Ipsen. Crystel’s work is a prime example of how cutting-edge science is making a real impact


A Life in Science: Driving Innovation Through Collaboration 
 • 1 mins read

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A Life in Science: Driving Innovation Through Collaboration 

Next in our ‘A Life in Science’ series, Dorinne Desposito, Predictive Toxicology Project Manager, shares her insights on driving innovation through creative thinking and the power of shared learning within our dedicated teams. Dorinne’s work exemplifies how cross-functional collaboration at Ipsen is


Breaking Barriers to Rare Disease Innovation: Reflections from the World EPA Congress 
 • 3 mins read

 – 3 mins read

Breaking Barriers to Rare Disease Innovation: Reflections from the World EPA Congress 

For individuals living with a rare disease, every day without treatment is a day too long. At the World Evidence, Pricing and Access (WEPA) congress in Amsterdam, I participated in a panel discussion on long-term access to rare disease innovation. The conversation reminded me that behind every polic