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Showing: 15 of 135 stories

Gathering insights to improve clinical trials direction study patient advisory board
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Gathering insights to improve clinical trials direction study patient advisory board

At Ipsen, we strive to improve the experiences of those participating in our clinical trials and do this by capturing insights from people living with the conditions we are investigating to help us to improve how we run our studies.  


Unchartered territory: Mapping the cervical dystonia patient experience  
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 – 2 mins read

Unchartered territory: Mapping the cervical dystonia patient experience  

We collaborated with Dystonia Europe to help uncover the unmet needs of people living with cervical dystonia – a rare, underdiagnosed neurological movement disorder that primarily affects the muscles in the neck. This can cause the head to turn to…


Co-creating recipe guides with the kidney cancer patient community to tackle undernutrition during treatment
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Co-creating recipe guides with the kidney cancer patient community to tackle undernutrition during treatment

In France, we partnered with patient organization Association pour La Recherche sur les Tumeurs du Rein (A.R.T.u.R) and experts to help people living with kidney cancer overcome undernutrition.


Uniting the neuroendocrine tumor (NET) community in Spain: Podcast series
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Uniting the neuroendocrine tumor (NET) community in Spain: Podcast series

We worked together with the Spanish patient organization NET España and local scientific society Grupo Español en Tumores Neuroendocrinos y Endocrinos (GETNE) on a podcast series to raise awareness of neuroendocrine tumors (NETs), a group of uncommon tumors that develop…


Tackling taboos in prostate cancer: Sex in the doctor’s office podcast
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 – 2 mins read

Tackling taboos in prostate cancer: Sex in the doctor’s office podcast

People living with prostate cancer in the Netherlands told us they needed more support around intimacy and sexual health due to the impact that their treatment can have on these. A LinkedIn poll also identified that 95% of caregivers of…