Rare Disease Day 2025: Imagining More for the Rare Disease Community 

Every day, millions of people around the world face the immense challenges of living with a rare disease. For these individuals and their families, resilience is essential, and hope becomes a lifeline. Rare Disease Day is a moment to honour their courage, amplify their voices, and reaffirm our shared vision of a future filled with opportunities beyond what anyone affected by a rare disease might have imagined possible. 

This year, we embrace the Rare Disease Day theme, “More Than You Can Imagine,” as a call to action for patients, caregivers, advocates, healthcare professionals, policymakers, and industry alike. It serves as a powerful reminder of what is possible when we work together to turn imagination into impact.  

Led globally by EURORDIS and supported by countless other organizations, Rare Disease Day serves as a vital platform to spotlight the rare disease community while driving awareness and collective action. Their efforts remind us of the importance of collaboration—not only on this day but throughout the year. 

At the heart of this year’s activities is the collective vision of what we can achieve when united by shared purpose. Ipsen employees, inspired by the resilience and determination of those living with rare diseases, came together to share their hopes and dreams for the community. Their perspectives reflect a shared belief that imagining more is not a solitary act—it is a collaboration driven by everyone dedicated to making a difference. 

The challenges in rare disease care remain significant. Delayed diagnoses, disparities in access, and barriers to support continue to impact patients around the world. Addressing these issues requires more than innovation; it demands partnerships, advocacy, and a deep understanding of the community’s needs. By working alongside patients, families, and advocates, we strive to ensure their voices shape the future of rare disease care. 

Rare Disease Day reminds us of the extraordinary potential we have to make a difference. It is an opportunity to focus not only on what is possible today but on what we can achieve tomorrow. Together, with the rare disease community, we can imagine—and create—a future filled with possibilities beyond anything we can currently imagine. 

Because when we imagine more, we can achieve more—not just for the few, but for everyone impacted by rare diseases. 

To learn more Rare Disease Day and read stories from the community, visit https://www.rarediseaseday.org/.