Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe 

The rare disease community continues to strive for innovative solutions to meet patient needs and ensure no person living with a rare disease is left behind.  

To mark Rare Disease Day 2023, Yann Le Cam, Chief Executive Officer of EURORDIS and Ipsen’s Jennifer Schranz, Global Head of Rare Disease, Research and Development, connected to discuss EURORDIS’ key focus areas including, shaping rare disease policy in Europe to put patients at the center and prioritizing a holistic patient-centered approach.  

Watch the video below containing an excerpt from this discussion, focusing on driving innovation, the power of early diagnosis, and the importance of ensuring the patient voice is heard to ensure adequate medical and social care is provided.