Fireside Chat: Innovation and Policy Change in Rare Diseases in Europe
The rare disease community continues to strive for innovative solutions to meet patient needs and ensure no person living with a rare disease is left behind.
To mark Rare Disease Day 2023, Yann Le Cam, Chief Executive Officer of EURORDIS and Ipsen’s Jennifer Schranz, Global Head of Rare Disease, Research and Development, connected to discuss EURORDIS’ key focus areas including, shaping rare disease policy in Europe to put patients at the center and prioritizing a holistic patient-centered approach.
Watch the video below containing an excerpt from this discussion, focusing on driving innovation, the power of early diagnosis, and the importance of ensuring the patient voice is heard to ensure adequate medical and social care is provided.
Together for ALGS Awareness Day
Advocating for babies with Biliary Atresia
Looking after a loved one with Progressive Familial Intrahepatic Cholestasis: Francesca’s Story
Partnering for Progress: The Importance of Collaboration in Primary Biliary Cholangitis (PBC) Awareness
Provide Better Care: PBC Awareness Day 2024
How physicians can help empower people living with Primary Biliary Cholangitis
The importance of personalized care to empower patients with PBC
Exploring life and parenthood with Primary Biliary Cholangitis
Progressive Familial Intrahepatic Cholestasis (PFIC): Liver experts discuss early diagnosis and management
