{"id":67544,"date":"2024-09-10T14:12:35","date_gmt":"2024-09-10T12:12:35","guid":{"rendered":"https:\/\/www.ipsen.com\/?p=67544"},"modified":"2024-10-16T10:02:58","modified_gmt":"2024-10-16T08:02:58","slug":"vivre-avec-un-cancer-neuroendocrinien-lhistoire-de-stephen","status":"publish","type":"post","link":"https:\/\/www.ipsen.com\/fr\/oncology-fr\/vivre-avec-un-cancer-neuroendocrinien-lhistoire-de-stephen\/","title":{"rendered":"Vivre avec un cancer neuroendocrinien\u00a0: l\u2019histoire de Stephen"},"content":{"rendered":"    <section class=\"video-card \">\n        <div class=\"container\">\n            <!-- Block Details -->\n            <div class=\"video-card-header\">\n                <h2 class=\"video-card-block-title hidden\"><\/h2>\n                <p class=\"charcoal-grey video-card-block-summary hidden\"> <\/p>\n            <\/div>\n\n            <!-- Video Iframe embed -->\n                            <div class=\"video-embed\"> \n                <iframe loading=\"lazy\" title=\"Stephen-For-A-Chance_video_VOST_FR-none (1)\" src=\"https:\/\/player.vimeo.com\/video\/1020090894?app_id=122963&#038;autoplay=1&#038;muted=1&#038;controls=1&#038;loop=1&#038;autopause=1&#038;background=0\" width=\"640\" height=\"360\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media\" frameborder=\"0\" allow=\"autoplay; fullscreen; picture-in-picture\" data-ot-ignore><\/iframe>                <\/div>\n            \n            <!-- Block CTA -->\n            <div class=\"cta-block hidden\">\n                            <\/div>\n\n        <\/div>\n    <\/section>\n\n\n\n<p>C\u2019est \u00e0 46&nbsp;ans seulement que Stephen a \u00e9t\u00e9 diagnostiqu\u00e9 d\u2019un cancer neuroendocrinien. Heureux dans son mariage avec sa femme et p\u00e8re de deux fils qui viennent de finir le lyc\u00e9e, dans la fleur de l\u2019\u00e2ge avec quelques dizaines d\u2019ann\u00e9es devant lui, Stephen a \u00e9t\u00e9 choqu\u00e9 et d\u00e9concert\u00e9 par son diagnostic. Son m\u00e9decin lui a dit qu\u2019il lui restait 10 \u00e0 15&nbsp;ans \u00e0 vivre. Stephen a commenc\u00e9 \u00e0 se demander s\u2019il allait vieillir avec sa femme et s\u2019il verrait ses fils grandir.<\/p>\n\n\n\n<p>Lorsque Stephen a \u00e9t\u00e9 diagnostiqu\u00e9, il n\u2019avait jamais entendu parler de cancer neuroendocrinien et ce n\u2019est pas surprenant. Le cancer neuroendocrinien est rare&nbsp;; actuellement, 35&nbsp;personnes sur 100&nbsp;000 vivent avec cette maladie dans le monde.<a href=\"#_edn1\" id=\"_ednref1\">[i]<\/a><sup>,<a href=\"#_edn2\" id=\"_ednref2\">[ii]<\/a><\/sup> Il peut \u00eatre difficile de diagnostiquer le cancer neuroendocrinien, cela prend souvent des ann\u00e9es, ce qui laisse le temps \u00e0 la tumeur de se propager<sup>1<\/sup>. Stephen a en effet ressenti ses premiers sympt\u00f4mes en 2011, mais \u00e0 l\u2019\u00e9poque tout allait bien d\u2019apr\u00e8s ses m\u00e9decins. Il a finalement \u00e9t\u00e9 diagnostiqu\u00e9 9&nbsp;ans plus tard.<\/p>\n\n\n\n<p>Le retard de diagnostic pour Stephen n\u2019est pas un cas isol\u00e9, c\u2019est pourquoi les personnes concern\u00e9es par le cancer neuroendocrinien ont choisi le z\u00e8bre comme analogie pour repr\u00e9senter leur communaut\u00e9. Ce choix a \u00e9t\u00e9 inspir\u00e9 par le dicton (anglophone) \u00ab&nbsp;Si vous entendez un bruit de sabot, pensez aux chevaux, pas aux z\u00e8bres&nbsp;\u00bb, qui renvoie \u00e0 la recommandation d\u2019envisager le diagnostic le plus \u00e9vident et le plus fr\u00e9quent, au lieu d\u2019une maladie plus rare. Comme les rayures des z\u00e8bres, aucune tumeur et aucun patient atteint d\u2019un cancer neuroendocrinien ne se ressemble.<\/p>\n\n\n\n<p>Mais Stephen n\u2019est pas seul dans son parcours. Il peut compter sur sa famille. Stephen s\u2019amuse de sa femme qui est plus pr\u00e9occup\u00e9e par son \u00e9tat qu\u2019il ne l\u2019est lui-m\u00eame. Elle est un soutien, une oreille attentive, et lui apporte de la positivit\u00e9 et des conseils. Stephen peut \u00e9galement compter sur le soutien sans faille de ses fils, Logan et Gavin, tous deux la vingtaine. Il d\u00e9crit Gavin comme un gar\u00e7on sensible qui remarque imm\u00e9diatement lorsque son p\u00e8re se comporte diff\u00e9remment et qu\u2019il ne va pas bien.<\/p>\n\n\n\n<p>En plus de sa famille, il peut \u00e9galement se reposer sur la <em>Canadian Neuroendocrine Society<\/em>, dans laquelle il a trouv\u00e9 une communaut\u00e9. L\u00e0-bas, Stephen a pu poser ses questions, trouver des r\u00e9ponses concernant son diagnostic et son parcours th\u00e9rapeutique, obtenir des ressources et surtout, \u00e9couter les histoires de personnes vivant avec un cancer neuroendocrinien. Gr\u00e2ce \u00e0 son blog et \u00e0 son nouveau r\u00f4le en tant que responsable du groupe de soutien dans son secteur, il esp\u00e8re sensibiliser et aider les personnes nouvellement diagnostiqu\u00e9es, comme d\u2019autres l\u2019ont fait pour lui.<\/p>\n\n\n\n<p>D\u00e9sormais, Stephen regarde vers l\u2019avenir. Il a pr\u00e9vu de vivre une partie de l\u2019ann\u00e9e en van avec sa femme, pour voyager et explorer autant que possible. En outre, il d\u00e9crit ses plus beaux souvenirs sur l\u2019eau, \u00e0 faire du cano\u00eb&nbsp;; c\u2019est l\u00e0 qu\u2019il trouve la paix et qu\u2019il se soigne le plus. Entour\u00e9 de ceux qu\u2019il aime et qu\u2019il ch\u00e9rit, Stephen a d\u00e9cid\u00e9 de ne pas fl\u00e9chir sous le poids du diagnostic, mais de profiter de la vie au maximum. Comme il le dit, il n\u2019est pas en train de mourir du cancer, il vit avec.<\/p>\n\n\n\n<p><strong><u>\u00c0 propos des tumeurs neuroendocrines (TNE)<\/u><\/strong><strong><u><\/u><\/strong><\/p>\n\n\n\n<p>Les tumeurs neuroendocrines (TNE) constituent un groupe de tumeurs rares qui se d\u00e9veloppent \u00e0 partir des cellules du syst\u00e8me neuroendocrinien, dans tout le corps<sup>3<\/sup>. Les TNE surviennent aussi bien chez les hommes que chez les femmes, en g\u00e9n\u00e9ral \u00e2g\u00e9s de 50 \u00e0 60&nbsp;ans, bien qu\u2019elles puissent affecter des personnes de tout \u00e2ge<sup>4<\/sup>. Les trois zones o\u00f9 les TNE sont les plus fr\u00e9quemment trouv\u00e9es dans le corps sont le tube digestif, le pancr\u00e9as et les poumons<sup>5<\/sup>. On estime que le nombre de personnes nouvellement diagnostiqu\u00e9es avec des TNE augmente en raison de la sensibilisation grandissante et de meilleures m\u00e9thodes de diagnostic, avec environ 35&nbsp;personnes sur 100&nbsp;000 qui vivent actuellement avec des TNE dans le monde<sup>1,2<\/sup>. Les sympt\u00f4mes des TNE sont souvent peu distincts et difficiles \u00e0 identifier, ce qui entra\u00eene des retards de diagnostic, avec pr\u00e8s d\u2019un tiers des personnes qui mettent au moins 5&nbsp;ans \u00e0 \u00eatre diagnostiqu\u00e9es avec des TNE<sup>1<\/sup>.<\/p>\n\n\n\n<p class=\"has-white-color has-text-color has-link-color wp-elements-5397be9e4b2a7a20a4b85867eee9836d\">\/<\/p>\n\n\n\n<!--Alert Card Layout Start Here-->\n<section class=\"alertcard-section\">\n      <div class=\"container\">\n        <!--Alert Box HTML Start Here-->\n        <div class=\"alert-box general-box\">\n                  <div class=\"info-contents\">\n            <p class=\"info-head visible\">R\u00e9f\u00e9rences<\/p>\n            <p class=\"info-sub-head-para hidden\"><\/p>\n            <div class=\"alert-content visible\"><ol>\n<li>Singh <em>et al<\/em>. Patient-Reported Burden of a Neuroendocrine Tumor (NET) Diagnosis: Results From the First Global Survey of Patients With NETs. <em>J Glob Oncol<\/em>. 2017 Feb; 3(1): 43\u201353.<\/li>\n<li>Durma <em>et al.<\/em> Epidemiology of Neuroendocrine Neoplasms and Results of Their Treatment with [177Lu]Lu-DOTA-TATE or [177Lu]Lu-DOTA-TATE and [90Y]Y-DOTA-TATE\u2014A Six-Year Experience in High-Reference Polish Neuroendocrine Neoplasm Center. <em>Cancers<\/em> 2023, 15(22), 5466; https:\/\/doi.org\/10.3390\/cancers15225466<\/li>\n<li>Neuroendocrine tumor (NET). https:\/\/www.cancer.gov\/pediatric-adult-rare-tumor\/rare-tumors\/rare-endocrine-tumor\/carcinoid-tumor. Consult\u00e9 en ao\u00fbt 2024.<\/li>\n<li>Neuroendocrine tumors. <a href=\"https:\/\/my.clevelandclinic.org\/health\/diseases\/22006-neuroendocrine-tumors-net\">https:\/\/my.clevelandclinic.org\/health\/diseases\/22006-neuroendocrine-tumors-net<\/a>. Consult\u00e9 en ao\u00fbt\u00a02024<\/li>\n<li>Jamal <em>et al<\/em>. Neuroendocrine tumor of the kidney. Diagnostic challenge and successful therapy. <em>Urology Annals\u00a0<\/em><a href=\"https:\/\/journals.lww.com\/urol\/toc\/2019\/11040\">11(4):p 435-438, Oct\u2013Dec 2019.<\/a>\u00a0DOI:\u00a010.4103\/UA.UA_169_18<\/li>\n<\/ol>\n<\/div>\n          <\/div>\n        <\/div>\n        <!--Alert Box HTML Start Here-->\n      <\/div>\n    <\/section>\n<!--Alert Card Layout End Here-->\n","protected":false},"excerpt":{"rendered":"<p>C\u2019est \u00e0 46&nbsp;ans seulement que Stephen a \u00e9t\u00e9 diagnostiqu\u00e9 d\u2019un cancer neuroendocrinien. Heureux dans son mariage avec sa femme et<\/p>\n","protected":false},"author":11,"featured_media":67540,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[6024],"tags":[],"class_list":["post-67544","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-oncology-fr","entry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Vivre avec un cancer neuroendocrinien\u00a0: l\u2019histoire de Stephen - Global<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ipsen.com\/fr\/oncology-fr\/vivre-avec-un-cancer-neuroendocrinien-lhistoire-de-stephen\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Vivre avec un cancer neuroendocrinien\u00a0: l\u2019histoire de Stephen - Global\" \/>\n<meta property=\"og:description\" content=\"C\u2019est \u00e0 46&nbsp;ans seulement que Stephen a \u00e9t\u00e9 diagnostiqu\u00e9 d\u2019un cancer neuroendocrinien. 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