{"id":36408,"date":"2023-08-29T12:38:23","date_gmt":"2023-08-29T10:38:23","guid":{"rendered":"https:\/\/www.ipsen.com\/?p=36408"},"modified":"2024-05-21T09:50:46","modified_gmt":"2024-05-21T07:50:46","slug":"rendre-les-essais-cliniques-pertinents-pour-les-survivants-dun-avc","status":"publish","type":"post","link":"https:\/\/www.ipsen.com\/fr\/neuroscience-fr\/rendre-les-essais-cliniques-pertinents-pour-les-survivants-dun-avc\/","title":{"rendered":"Rendre les essais cliniques pertinents pour les survivants d&#8217;un AVC"},"content":{"rendered":"\n<p>Chez Ipsen, nous nous effor\u00e7ons de faire en sorte que tous nos essais cliniques refl\u00e8tent le monde r\u00e9el, ce qui n\u00e9cessite la participation d&#8217;un \u00e9chantillon repr\u00e9sentatif de personnes vivant avec une pathologie sp\u00e9cifique. N\u00e9anmoins, chez certains survivants d&#8217;un AVC souffrant de spasticit\u00e9 \u2014 un trouble pouvant provoquer une raideur des muscles \u2014 \u00e0 la suite de leur AVC, d&#8217;importants obstacles peuvent emp\u00eacher leur participation \u00e0 des essais cliniques.<\/p>\n\n\n\n<p>Pour surmonter les obstacles potentiels \u00e0 leur participation \u00e0 l&#8217;\u00e9tude EPITOME \u00e9valuant la spasticit\u00e9 \u00ab probl\u00e9matique \u00bb post-AVC qui pourrait b\u00e9n\u00e9ficier d&#8217;un traitement, nous avons sollicit\u00e9 les commentaires de survivants d&#8217;un AVC et d&#8217;un aidant sur le concept de l&#8217;\u00e9tude afin de l&#8217;optimiser pour mieux r\u00e9pondre \u00e0 leurs besoins. Le panel nous a \u00e9galement aid\u00e9s \u00e0 mieux comprendre l&#8217;exp\u00e9rience quotidienne des survivants d&#8217;un AVC souffrant de spasticit\u00e9 post-AVC et de leurs aidants.<\/p>\n\n\n\n<p>Les informations fournies par le panel de patients ont contribu\u00e9 \u00e0 d\u00e9finir le d\u00e9roulement de l&#8217;essai. Les modifications apport\u00e9es au concept de l&#8217;\u00e9tude, sur la base des informations recueillies, consistaient notamment \u00e0 :<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>prolonger la p\u00e9riode de recrutement pour tenir compte du manque de temps dont les patients disposaient pour envisager la spasticit\u00e9&nbsp;;<\/li>\n\n\n\n<li>expliquer les objectifs de l&#8217;\u00e9tude dans des termes simples, sans jargon&nbsp;;<\/li>\n\n\n\n<li>am\u00e9liorer les processus de consentement, de recrutement et de suivi&nbsp;;<\/li>\n\n\n\n<li>am\u00e9liorer la communication avec les patients&nbsp;;<\/li>\n\n\n\n<li>donner aux participants la possibilit\u00e9 de r\u00e9aliser des \u00e9valuations \u00e0 distance, par t\u00e9l\u00e9phone ou via un formulaire en ligne, et permettre aux aidants de r\u00e9pondre au nom de la personne dont il s&#8217;occupe.<\/li>\n<\/ul>\n\n\n\n<p>Les r\u00e9sultats ont \u00e9t\u00e9 publi\u00e9s et pr\u00e9sent\u00e9s lors du European Life After Stroke Forum en 2023. Ces r\u00e9sultats ont \u00e9t\u00e9 r\u00e9dig\u00e9s avec l&#8217;association de patients bas\u00e9e au Royaume-Uni Different Strokes et l&#8217;un des experts du panel de patients. Le projet a \u00e9galement \u00e9t\u00e9 promu en interne chez Ipsen, apr\u00e8s avoir \u00e9t\u00e9 pr\u00e9s\u00e9lectionn\u00e9 parmi nos projets patients en neurosciences les plus impactants au monde lors de notre c\u00e9r\u00e9monie annuelle de remise des prix STEP UP, pour avoir contribu\u00e9 \u00e0 briser les barri\u00e8res pour les patients.<\/p>\n\n\n\n<p>Nos initiatives de soutien aux personnes atteintes de spasticit\u00e9 dans le monde ne s&#8217;arr\u00eatent pas l\u00e0. Au Br\u00e9sil, nous avons co-cr\u00e9\u00e9 un site Web pour fournir aux survivants d&#8217;un AVC des informations fiables sur la spasticit\u00e9 post-AVC avec l&#8217;aide d&#8217;associations de patients et de soci\u00e9t\u00e9s m\u00e9dicales. En Espagne, nous avons d\u00e9velopp\u00e9 un court m\u00e9trage sur le v\u00e9cu des personnes atteintes de paralysie c\u00e9r\u00e9brale et de spasticit\u00e9 pour d\u00e9stigmatiser le handicap.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Chez Ipsen, nous nous effor\u00e7ons de faire en sorte que tous nos essais cliniques refl\u00e8tent le monde r\u00e9el, ce qui<\/p>\n","protected":false},"author":11,"featured_media":36405,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1193],"tags":[],"class_list":["post-36408","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-neuroscience-fr","entry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Rendre les essais cliniques pertinents pour les survivants d\u2019un AVC | Ipsen Neurosciences<\/title>\n<meta name=\"description\" content=\"Ipsen Neurosciences s\u2019attache \u00e0 rendre les essais cliniques plus pertinents pour les survivants d\u2019un AVC. 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