{"id":36401,"date":"2023-08-29T12:36:27","date_gmt":"2023-08-29T10:36:27","guid":{"rendered":"https:\/\/www.ipsen.com\/?p=36401"},"modified":"2024-05-20T13:33:25","modified_gmt":"2024-05-20T11:33:25","slug":"recueillir-des-retours-dexperience-pour-ameliorer-les-essais-cliniques-conseil-consultatif-des-patients-de-letude-direction","status":"publish","type":"post","link":"https:\/\/www.ipsen.com\/fr\/neuroscience-fr\/recueillir-des-retours-dexperience-pour-ameliorer-les-essais-cliniques-conseil-consultatif-des-patients-de-letude-direction\/","title":{"rendered":"Recueillir des retours d&#8217;exp\u00e9rience pour am\u00e9liorer les essais cliniques \u2013 Conseil consultatif des patients de l&#8217;\u00e9tude DIRECTION"},"content":{"rendered":"\n<p>Chez Ipsen, nous nous effor\u00e7ons d&#8217;am\u00e9liorer l&#8217;exp\u00e9rience des personnes participant \u00e0 nos essais cliniques en nous basant sur les \u00e9clairages des patients atteints des maladies que nous \u00e9tudions. Leurs retours nous permettent ainsi d&#8217;adapter la fa\u00e7on dont nous menons nos \u00e9tudes \u00e0 leurs besoins.<\/p>\n\n\n\n<p>Nous avons constitu\u00e9 un conseil consultatif de patients, compos\u00e9 de personnes atteintes de spasticit\u00e9 (une affection pouvant entra\u00eener une augmentation de la tension musculaire, une perte du contr\u00f4le de la motricit\u00e9 et une posture corporelle anormale) et d&#8217;aidants, avec l&#8217;objectif d&#8217;am\u00e9liorer la conception, les mat\u00e9riaux et la logistique de l&#8217;\u00e9tude DIRECTION, qui \u00e9value l&#8217;efficacit\u00e9 d&#8217;un traitement de la spasticit\u00e9 des membres sup\u00e9rieurs (bras).<\/p>\n\n\n\n<p>Le conseil consultatif de patients nous a aid\u00e9s \u00e0 comprendre leur exp\u00e9rience de vie avec la spasticit\u00e9, leurs besoins et leurs attentes dans le cadre de leur participation \u00e0 l&#8217;\u00e9tude DIRECTION, ainsi que les d\u00e9fis potentiels li\u00e9 \u00e0 l&#8217;\u00e9tude et les solutions que nous pouvions mettre en place pour les surmonter. Les principales pistes de solutions pour am\u00e9liorer l&#8217;exp\u00e9rience des patients au cours de l&#8217;\u00e9tude consistaient \u00e0 :&nbsp;<\/p>\n\n\n\n<ul class=\"wp-block-list\">\n<li>Ajouter un r\u00e9sum\u00e9 vulgaris\u00e9 dans le formulaire de consentement \u00e9clair\u00e9, expliquant ce \u00e0 quoi les participants peuvent s&#8217;attendre pendant l&#8217;\u00e9tude.&nbsp;<\/li>\n\n\n\n<li>Apporter un soutien logistique, avec par exemple la planification des consultations en amont et l&#8217;organisation du transport.&nbsp;<\/li>\n\n\n\n<li>Favoriser une plus grande clart\u00e9 de communication entre les professionnels de sant\u00e9 et les participants.<\/li>\n<\/ul>\n\n\n\n<p>Ces \u00e9clairages ont \u00e9t\u00e9 int\u00e9gr\u00e9s au processus de l&#8217;\u00e9tude et aux documents destin\u00e9s aux patients. Ipsen \u00e9tudie actuellement divers moyens de communiquer aux participants des mises \u00e0 jour interm\u00e9diaires afin de les tenir inform\u00e9s de l&#8217;avancement de l&#8217;\u00e9tude.&nbsp;<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Chez Ipsen, nous nous effor\u00e7ons d&#8217;am\u00e9liorer l&#8217;exp\u00e9rience des personnes participant \u00e0 nos essais cliniques en nous basant sur les \u00e9clairages<\/p>\n","protected":false},"author":11,"featured_media":36398,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1193],"tags":[],"class_list":["post-36401","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-neuroscience-fr","entry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Am\u00e9liorer les essais cliniques \u2013 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