{"id":36380,"date":"2023-08-29T12:27:41","date_gmt":"2023-08-29T10:27:41","guid":{"rendered":"https:\/\/www.ipsen.com\/?p=36380"},"modified":"2023-08-29T12:28:42","modified_gmt":"2023-08-29T10:28:42","slug":"unir-la-communaute-de-patients-atteints-de-tumeurs-neuroendocrines-tne-et-leurs-soignants-en-espagne-serie-de-podcasts","status":"publish","type":"post","link":"https:\/\/www.ipsen.com\/fr\/oncology-fr\/unir-la-communaute-de-patients-atteints-de-tumeurs-neuroendocrines-tne-et-leurs-soignants-en-espagne-serie-de-podcasts\/","title":{"rendered":"Unir la communaut\u00e9 de patients atteints de tumeurs neuroendocrines (TNE) et leurs soignants en Espagne : s\u00e9rie de podcasts"},"content":{"rendered":"\n

Nous avons collabor\u00e9 avec l’association de patients espagnole NET Espa\u00f1a et la soci\u00e9t\u00e9 scientifique locale Grupo Espa\u00f1ol en Tumores Neuroendocrinos y Endocrinos (GETNE) sur une s\u00e9rie de podcasts visant \u00e0 sensibiliser le plus grand nombre aux tumeurs neuroendocrines (TNE), un groupe de tumeurs rares qui se d\u00e9veloppent \u00e0 partir des cellules du syst\u00e8me neuroendocrinien, dispers\u00e9es dans tout le corps.<\/p>\n\n\n\n

Outre la sensibilisation des auditeurs aux TNE, le podcast co-cr\u00e9\u00e9 a \u00e9galement permis de mettre en relation des personnes atteintes de TNE, des experts ainsi que des professionnels de sant\u00e9 en Espagne pour partager des connaissances et des exp\u00e9riences les uns avec les autres.<\/p>\n\n\n\n

Entre novembre 2020 et septembre 2021, dix \u00e9pisodes mensuels ont \u00e9t\u00e9 cr\u00e9\u00e9s, chacun retransmettant des conversations \u00e9clairantes entre des personnes atteintes de TNE et des professionnels de la sant\u00e9, sur leurs r\u00e9flexions, leurs questionnements et leurs pr\u00e9occupations, concernant diff\u00e9rents aspects du quotidien avec la maladie. Les \u00e9pisodes ont ensuite \u00e9t\u00e9 diffus\u00e9s sur un site Internet d\u00e9di\u00e9 (www.entretnes.com<\/a>), comptabilisant plus de 2 060 t\u00e9l\u00e9chargements et \u00e9coutes dans toute l’Espagne et plus de 400 dans d’autres pays hispanophones, dont l’Argentine, la Colombie, le Chili et le P\u00e9rou.<\/p>\n\n\n\n

Ce projet d\u00e9montre l’importance de collaborer avec la communaut\u00e9 de patients pour leur apporter des solutions qui auront le plus d’impact. Blanca Guar\u00e1s, Pr\u00e9sidente de NET Espa\u00f1a, a d\u00e9clar\u00e9 : \u00ab Je souhaite souligner l’importance de vivre une telle exp\u00e9rience ensemble, avec un objectif commun. Aucun patient ne devrait se sentir isol\u00e9. C’est pourquoi l’opportunit\u00e9 pour NET Espa\u00f1a de prendre une part active au projet EntreTNEs est d\u00e9j\u00e0 une r\u00e9ussite en soi. En tant que patients, nous avons r\u00e9ussi \u00e0 amplifier notre voix et \u00e0 faire conna\u00eetre nos pr\u00e9occupations\u2026 mais aussi nos espoirs d’am\u00e9liorer \u00e0 la fois le diagnostic pr\u00e9coce et la prise en charge globale des patients atteints de TNE. \u00bb<\/em><\/p>\n","protected":false},"excerpt":{"rendered":"

Nous avons collabor\u00e9 avec l’association de patients espagnole NET Espa\u00f1a et la soci\u00e9t\u00e9 scientifique locale Grupo Espa\u00f1ol en Tumores Neuroendocrinos<\/p>\n","protected":false},"author":11,"featured_media":36790,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[6024],"tags":[],"class_list":["post-36380","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-oncology-fr","entry"],"acf":[],"yoast_head":"\nUnir la communaut\u00e9 de patients atteints de tumeurs neuroendocrines (TNE) et leurs soignants en Espagne : s\u00e9rie de podcasts - Global<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ipsen.com\/fr\/oncology-fr\/unir-la-communaute-de-patients-atteints-de-tumeurs-neuroendocrines-tne-et-leurs-soignants-en-espagne-serie-de-podcasts\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Unir la communaut\u00e9 de patients atteints de tumeurs neuroendocrines (TNE) et leurs soignants en Espagne : s\u00e9rie de podcasts - 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