{"id":27895,"date":"2020-10-09T09:00:44","date_gmt":"2020-10-09T07:00:44","guid":{"rendered":"https:\/\/d36deud6t4mnhi.cloudfront.net\/?p=27895"},"modified":"2023-05-24T13:10:27","modified_gmt":"2023-05-24T13:10:27","slug":"utiliser-les-donnees-en-vie-reelle-pour-apporter-aux-patients-des-solutions-ciblees-et-efficaces","status":"publish","type":"post","link":"https:\/\/www.ipsen.com\/fr\/general-fr\/utiliser-les-donnees-en-vie-reelle-pour-apporter-aux-patients-des-solutions-ciblees-et-efficaces\/","title":{"rendered":"Utiliser les donn\u00e9es en vie r\u00e9elle pour apporter aux patients des solutions cibl\u00e9es et efficaces"},"content":{"rendered":"\n<p>Les efforts de recherche visant \u00e0 am\u00e9liorer la vie des patients ne ressemblent pas toujours aux sc\u00e8nes de films dans lesquelles un brillant scientifique fait une d\u00e9couverte capitale, seul dans son laboratoire. L\u2019innovation prend parfois la forme d\u2019une intelligence artificielle, qui analyse d\u2019\u00e9normes quantit\u00e9s de donn\u00e9es. Elle peut \u00e9galement s\u2019apparenter \u00e0 une \u00e9quipe qui s\u2019emploie \u00e0 d\u00e9velopper de nouveaux moyens pour mesurer l\u2019efficacit\u00e9 des traitements. Quoi qu\u2019il en soit, elle doit toujours passer par une \u00e9tape essentielle&nbsp;: prendre le temps de poser les bonnes questions aux patients, et d\u2019\u00e9couter&nbsp;<em>r\u00e9ellement&nbsp;<\/em>leurs r\u00e9ponses.<\/p>\n\n\n\n<p>Les douze abstracts que nous pr\u00e9senterons lors du Congr\u00e8s international de neuror\u00e9habilitation (WCNR \u2013 World Congress for Neurorehabilitation) illustrent parfaitement la qualit\u00e9 des informations que l\u2019on peut recueillir aupr\u00e8s des patients lorsqu\u2019on les \u00e9coute vraiment. Les travaux que nous d\u00e9voilerons se basent sur des donn\u00e9es approfondies en vie r\u00e9elle ainsi que les retours d\u2019exp\u00e9rience des patients que nous avons recueillis pendant deux ans. Ces donn\u00e9es nous ont permis de comprendre deux choses essentielles&nbsp;: d\u2019abord, l\u2019importance d\u2019identifier de nouvelles m\u00e9thodes pertinentes pour mesurer l\u2019efficacit\u00e9 des traitements sur les patients&nbsp;; et deuxi\u00e8mement, le r\u00f4le que les prestataires de soins de sant\u00e9 peuvent et devraient jouer pour aider les patients \u00e0 d\u00e9finir et \u00e9valuer leurs objectifs personnels dans le traitement de maladies chroniques.<sup>1<\/sup><\/p>\n\n\n\n<p>Cette d\u00e9marche est particuli\u00e8rement importante pour les patients atteints de maladies chroniques invalidantes qui p\u00e8sent sur leur qualit\u00e9 de vie, comme la spasticit\u00e9. Nous comprenons mieux aujourd\u2019hui en quoi l\u2019utilisation de mesures standardis\u00e9es, cibl\u00e9es selon les sp\u00e9cificit\u00e9s de la maladie, associ\u00e9es \u00e0 la mise en place d\u2019une \u00e9chelle de r\u00e9alisation d\u2019objectifs (GAS \u2013 Goal Attainment Scaling), qui d\u00e9finit des objectifs mutuels pour le patient et le m\u00e9decin, permet de mesurer le progr\u00e8s plus pr\u00e9cis\u00e9ment et efficacement que les seules mesures standardis\u00e9es. La m\u00e9thode GAS, qui se focalise sur les objectifs personnels de chaque patient, g\u00e9n\u00e8re ainsi des donn\u00e9es pertinentes et quantifiables sur l\u2019efficacit\u00e9 d\u2019un traitement.<sup>2<\/sup><\/p>\n\n\n\n<p>Nos \u00e9quipes de neurosciences comprennent depuis longtemps l\u2019importance d\u2019adopter une approche int\u00e9gr\u00e9e dans la prise en charge des pathologies chroniques. Les donn\u00e9es tir\u00e9es de l\u2019\u00e9tude nous ont donn\u00e9 un solide aper\u00e7u des m\u00e9thodes \u00e0 employer pour mesurer efficacement les progr\u00e8s des patients, et du soutien dont ils ont besoin de la part des m\u00e9decins pour y parvenir. Forts de ces connaissances, nous pouvons mieux accompagner les m\u00e9decins qui travaillent en \u00e9troite collaboration avec les patients.<\/p>\n\n\n\n<p>Il est clair aujourd\u2019hui que nous pouvons faire une r\u00e9elle diff\u00e9rence pour les patients en nous effor\u00e7ant continuellement \u2013 ainsi que nos partenaires \u2013 de les \u00e9couter. De mon point de vue, ces donn\u00e9es sont une source de motivation suppl\u00e9mentaire pour \u00e9couter les patients et rechercher des moyens innovants d\u2019int\u00e9grer leurs observations \u00e0 chaque \u00e9tape de nos efforts de recherche, afin d\u2019avoir la certitude que nos solutions leur apportent une r\u00e9elle valeur.<\/p>\n\n\n\n<p><em><br>Par David Loew, CEO<\/em><\/p>\n\n\n\n<ol class=\"wp-block-list\">\n<li><a href=\"https:\/\/www.ipsen.com\/fr\/press-releases\/ipsen-presentera-12-abstracts-lors-de-la-11eme-edition-du-world-congress-for-neurorehabilitation-wcnr-qui-se-deroulera-conjointement-avec-le-35eme-congres-de-la-societe-francaise-de-medecine-physiqu\/\">Ipsen WCNR Abstract List<\/a>.<\/li>\n\n\n\n<li>Turner-Stokes et al. Impact of integrated upper limb spasticity management including botulinum toxin A on patient-centred goal attainment: rationale and protocol for an international prospective, longitudinal cohort study (ULIS-III)&nbsp;<em>BMJ Open.&nbsp;<\/em>June 2016. Available:&nbsp;<a href=\"https:\/\/bmjopen.bmj.com\/content\/6\/6\/e011157\">https:\/\/bmjopen.bmj.com\/content\/6\/6\/e011157<\/a><\/li>\n<\/ol>\n","protected":false},"excerpt":{"rendered":"<p>Les efforts de recherche visant \u00e0 am\u00e9liorer la vie des patients ne ressemblent pas toujours aux sc\u00e8nes de films dans<\/p>\n","protected":false},"author":9,"featured_media":15964,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[1215],"tags":[4393],"class_list":["post-27895","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-general-fr","tag-patient-fr","entry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v22.5 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Utiliser les donn\u00e9es en vie r\u00e9elle pour apporter aux patients des solutions cibl\u00e9es et efficaces - Global<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.ipsen.com\/fr\/general-fr\/utiliser-les-donnees-en-vie-reelle-pour-apporter-aux-patients-des-solutions-ciblees-et-efficaces\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Utiliser les donn\u00e9es en vie r\u00e9elle pour apporter aux patients des solutions cibl\u00e9es et efficaces - 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