Collette spent almost 20 years going back and forth between different doctors and treatments, before she was finally diagnosed with
Collette spent almost 20 years going back and forth between different doctors and treatments, before she was finally diagnosed with
The rare disease community continues to strive for innovative solutions to meet patient needs and ensure no person living with
This year marks the 17th anniversary since the discovery of the ACVR1 gene was announced, a major scientific milestone in fibrodysplasia ossificans progressiva
‘Invisible’ diseases like primary biliary cholangitis (PBC) can be difficult to recognise, diagnose and to manage effectively. Here Prof. Gideon
You can never truly understand what it’s like to live with an ultra-rare condition unless you’ve experienced it for yourself.
I was honored to be invited to take on the challenge to live ‘A Life in a Day of a
The International Liver Congress (ILC)1 provides a key opportunity for us to meet and discuss the management and research of
We are delighted that this FOP Awareness Day Dr Rolf Morhart shared his invaluable insights gained through his career working