Category: Rare Disease

Every four years, Rare Disease Day lands on the ‘rarest’ day of the year, 29th February. Due to leap years,

Hearing a rare liver disease diagnosis can be one of the most emotionally turbulent moments in a person’s life.1 For

“The important thing with PBC is to take a holistic view of it, and think ‘What are the problems we

Jennifer Schranz (Ipsen’s Global Head of Rare Diseases) attended The Liver Meeting from November 10-14, sharing key insights from her

Developing innovation for people living with rare diseases is uniquely challenging. It requires all the different pieces of the puzzle–

At Ipsen we have been focused on developing new and innovative treatments for rare diseases for many years in endocrinology,

At the latest edition of European Health Forum Gastein, Ipsen held an interactive session to raise awareness of the challenges

As anyone living with Primary Biliary Cholangitis (PBC) – a rare and progressive autoimmune liver disease1 – knows, the disease

FOP is an ultra-rare genetic disorder where extra bone formation takes place in soft tissues, including muscles, tendons and ligaments,

You can never truly understand what it’s like to live with an ultra-rare condition unless you’ve experienced it for yourself.