Category: Rare Disease
The Evolving Landscape of Liver Disease: Innovation, Integration, and Impact
Why Liver Disease? A Vision for Change Liver disease has emerged as a critical focus for the healthcare science community,
PBC Awareness Day: Confronting Bias and Elevating Patient Voices
An article by Josep Catllà, Executive Vice President, Chief Corporate Affairs Officer For the thousands of individuals, mostly women, living
Recognizing the Signs Early: Improving Outcomes for Children with Rare Liver Diseases
In a recent conversation, Professor Björn Fischler, paediatric hepatologist at the Karolinska Institute in Sweden, and Laure Dorey, Director of
Beyond tired: Understanding fatigue in Primary Biliary Cholangitis
Most common symptoms of PBC Fatigue is a common and debilitating symptom of PBC Up to 55% of people living
Understanding PBC: Managing what Matters Most
Ipsen’s Sandra Silvestri sat down with Dr. Laura Cristoferi, Professor Mark Swain, and Professor David Jones to explore the latest
A Journey of Strength and Hope, Joris and Maria’s story
Joris is a thriving seven-and-a-half-year-old boy who has been on a journey requiring strength and hope from himself, and all
Céline and Suzanne: Navigating Alagille Syndrome
At just nine years old, Suzanne is a bright, creative young girl who loves dancing, drawing, exploring the woods, and
Living with Rare Liver Diseases: Unique challenges, Shared Experiences
Professor David Jones and Professor Valerie McLin were compensated by Ipsen for their time. Rare cholestatic liver diseases are conditions
Scientific Journey from Coal to Diamond: Myths and Misperceptions in Rare Disease Innovation
. An article by Jennifer Schranz, Senior Vice President and Global Head of Rare Diseases at Ipsen In storytelling, you